I'm a female in my thirties and I’m a carer for an adult family member who has had Epilepsy for many years. Speaking to others over the years it seems not many people actually understand Epilepsy other than the name and the ‘shaking’, not the before, during, and after effects that a person with Epilepsy goes through. There are lots of fantastic organisations out there that are doing so much, but I think there is still a lack of public understanding/education about this common neurological disorder.
I began my Epilepsy Twitter account (with tutorial help from my neice/nephew) to learn from others and to help raise awareness at the same time, as well as supporting others by retweeting, as it’s nice to see on Twitter lots of other active accounts/groups/pages all over the world sharing tweets to help get the information regarding Epilepsy ‘out there’. I’m glad I started my Twitter account just before worldwide Epilepsy awareness ‘Purple Day’, as this is the best time to raise the awareness . . . . . . Happy Purple Day everyone.